March 25, 2008

Pre-Op Appt.

IT'S A GO!!!! YEAH! YEAH! YEAH!!
Oh gosh were we nervous. The nurse came in, took his vitals, and asked all kinds of questions about his recent health and medications. We told her about the sinusitis and thrush and all of the meds he was taking. His vitals were great and his lungs were clear, but she was a little concerned with the thrush issue. On to the next office. Before leaving Bauer made sure he left the room in ship shape!!
On to the anesthesiologist it wasn't her call to make concerning thrush. She was mainly in charge of clearing him from any issues that would complicate the anesthesia. He did great with anesthetics last time so there wasn't any concern.

Next we saw Dr. Mulliken's nurse. I was just waiting for her to say, "Nope, I'm sorry Thrush is like the plague. We won't be able to have the operation."

Even though there was still a little bit on the side of his cheek it wasn't on his tongue or palate so she wasn't worried about it at all.

We finally got the all clear!! We wanted to just make a full sprint to the nearest exit before Bauer coughed, sneezed, farted too loud or made any other noise that would be of any concern.

We have to call today around 3:00 p.m. to find out what time the surgery will be.
For now we are just hanging out in the hotel room.

Boston Bound - Take 3

Here we go again. Our flight left Orlando at 7:30 a.m. Bauer did great, but I could tell this time the pressure on the way down was bothering him. We tried to just get him to take what we could out of the sippy cup. Seemed to help.
I accidently left his clothes attached to his backpack carrier which had now been put under the plane so we were hoping that his little tummy wouldn't prove itself explosive once again. Thank goodness he was fine.
Once we landed we all bundled up for the 40 degree weather and headed for the hotel room.

Adam and I both agreed how much pressure we felt come off our shoulders just finally getting to Boston.

We had our ENT/audiology appt. today at 2:30 p.m. They were going to decide if tubes would need to be placed in Bauer's ear during his palate surgery.
The doctor said Bauer did have a little bit of fluid on each ear, but it wasn't bad. We are hoping that some of the fluid is from the cold he just got over 3-4 weeks ago.
After his hearing test the audiologist also said there is a little bit of hearing loss, but nothing permanent.
So based on their information and suggestions/personal opinions from family, friends, and the doctors/nurses we have decided not to have the tubes inserted at this time.


Bauer hasn't ever had an ear infection and I got the feeling that the doctors were a little surprised that the test results weren't worse. In fact, the ENT actually said that if we didn't have surgery in 2 days she would just tell us to come back in a couple of months and we would re-test and decide if Bauer's fluid continued to increase and hearing decrease and then decide on the tubes.
In short, all went well and we've passed the first bump in the road.

Tomorrow we will have our pre-op evaluation and they will let us know whether Bauer is clear for surgery. After the thrush and sinusitis we are a little nervous, but just hoping and praying that they will give us the "thumbs up".

Bubble Man!

I think one of the hardest parts about Bauer's surgeries is keeping him from getting sick beforehand. As much as you try to keep them in a bubble it seems like something always try to break through. Within the last month Bauer has had a mild case of sinusitis and within the last week had Thrush. He had a weird rash on his butt and we treated it, but it wasn't going away and then one of the nurses in Boston said it may be a yeast infection and if so to check his mouth for thrush. Sure enough I open his mouth and there are white spots on his cheeks. It's a wonder I haven't had a complete heart attack this week. I'm sure those closest to me would agree I've been a little tense lately :) "Cast your cares upon Him" (1 Peter 5:7) has come to a whole new level lately. At one point I remember saying, "Well, Lord, there's nothing we can do about it except treat what he has and hope it goes away."
Thank God we have one of the best pediatricians you could ever ask for. She is always willing to have us come up and check Bauer out at any time. We really appreciate everything she does for us. We call the minute ANYTHING seems off when we are this close to leaving.
So treating Bauer for the Thrush and yeast infection on his bottom this past week has been quite the fun. We started off having to drive to Hardee County to get the right medicines. Honestly, I would have driven to Atlanta if needed. We were down to the wire and did not want to give the hospital any reason to tell us "no" to surgery.
If your child does get sick close to the date don't give up. Get on it immediately and get them into the doctor's office. Don't wait for it to "go away". We've even had Bauer on antibiotics this past week as a preventative measure.
So now we have to get to Boston in a couple of days and get them to say he's okay for surgery.
aaaaahhhhhhhhhh!
Blood Pressure - 180/120
Heart Rate - 120 beats per minute
Nervometer - skyhigh

"Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? Who of you by worrying can add a single hour to his life?" Matthew 6:26-27

Wow, have we had to remind ourselves of this on a daily basis.

SOUP UP THE ARTS!!

Our local high school art club annual community project is called Soup Up The Arts. The students create and sell hundreds of soup bowls for a charity of their choice while also displaying other works of art designed throughout the year. It's a really fun night and we were honored to be chosen as one of the proceed recipients.
The customers pay $10 and they receive a home-made bowl, soup, bread, and drink donations from businesses and individuals within the community. The students and teachers worked for months getting this prepared. We are so thankful for their time and love. We can't tell you how much we appreciate it!! Thank you.
Bauer had so much fun watching everyone. Again, we can't wait until he can understand the amount of support and care people gave towards helping him. Absolutely amazing.

SIPPY CUP!!

Oh dear Lord. We knew Bauer would have to be off the bottle and on the sippy cup by the time surgery came around. Thank you to all the moms who have "been there, done that" and helped in getting us off on the right foot.



We found the Nuby Soft Wide Spout Insulated Cup worked best for us, but your child may like something else. There are many cups to choose from. Since Bauer can't actually suck yet, we chose the soft nipple because when he bites down the formula is released into his mouth. We did have to cut the valves to help the formula flow better. If we didn't cut them enough the formula would barely drip and Bauer would get frustrated. We cut some too much and Bauer gagged. After working with it we finally found a cut that worked. We liked it because the nipple is wider and when Bauer tilts it back the liquid doesn't go all over the place. This picture shows that it also fits the sippy with a handle, but we noticed that the rings are different and it spills a little bit if you interchange the rings. We decided to stick with the insulated cups to prevent mixing them up.


We started off just letting Bauer taking some apple juice out one of the sippies. He loved the juice and got used to the new nipple. Being something foreign he wouldn't ever take a whole lot from it. But one day we were just letting Bauer play with the sippy and my brother went over to hold it for him and he finished the entire thing. aaaaaaaaaaaaaaaaaaaahhhhhhhhhhhh!!! Now we knew he could do it. The only negative thing about the juice was he expected that to be in his cup and when we started sneaking in milk he knew something wasn't right. We are not sure, but the formula appeared to curdle when mixed with the apple juice. We could not find anything online about it, but we stopped mixing them just in case.


I've heard people say that God shows you things about yourself through each child. Well, this child has shown me that I don't have quite as much patience as I would like. I wanted Bauer to get this whole sippy thing so bad. There were times he would just hate the thing and wouldn't want anything to do with it. I wanted to chunk it through the window because I felt so stupid for not being able to help him get it. I realized quickly that the bottle was just a comfort for him and babies are not very crazy about changing anything. So we slowly kept working on it and tried to stay calm with the whole thing. Over about a 3 week period he gradually kept cutting out bottle after bottle. His 5:00 a.m was always the one he refused most, but then one morning he just took it with no problem. I COULD HAVE THROWN HIM IN THE AIR AND DONE A BACK FLIP! Seeing as how this would have scared the crap out of him and put me in the hospital, I stayed calm and he finished the cup. It was February 26th, my birthday, when he finally went an entire 24 hours without a bottle. Happy Birthday to me!! There was no way in heaven we were ever going to put a bottle near his mouth again because we knew he was completely capable.


One of the best places we found answers was at http://www.cleft.org/ . Go to the discussion list and check out some of the topics. If you don't find an answer type in your question and normally someone will answer with their suggestions. It helped us so much.


The most important things to remember are:


*stay calm - don't throw cups across the room - :)


*try different sippies - it's expensive, but you'll be amazed at the difference.


*ask other moms about their experience


*start early - give yourself and your child time to get use to it. they don't like change any more than we do.


*pray for patience and don't panic. They are completely capable of doing it.



Oatmeal only please.

I have no idea why we haven't tried this before now, but one day I realized we have never given Bauer oatmeal by itself. We've tried rice, fruits, veggies, and oatmeal mixes which he loved, but couldn't ever keep out of his nose. It usually lasted about 5 bites and things started exploding from his nostrils.














But for some reason the straight oatmeal bites stayed down and he loved it. He loved all the other stuff, but obviously couldn't ever finish the whole bowl. We were so excited. We could still work on the spoon technique and he was more satisfied after meals. Yeah!!
So if you child is still not able to keep solids down keep trying new combinations. Hopefully, something will work. If not, I've heard from plenty of people that it's okay. They will eat just fine after the palate is fixed. Bauer usually likes the oatmeal not too thick, but not too soupy. Sounds like a very general measurement, but that's the best way to put it.

Sometimes you just have to laugh!!

Well, as always, with Adam and I it’s an adventure. We learned a very valuable lesson on this last flight………………………………………………………..BOOK YOUR FLIGHTS EARLY!!!!! I think our seat numbers were 105 A & B. Ha!! As we kept walking back towards the plane I began to wonder how far back the seat numbers really went. We passed the front and middle sections and then came up on our seats. THE VERY LAST TWO!! Yep, the seats where you can’t hear anything because the engines are 3 feet behind you. That was us. Oh and there wasn’t any window. So now we can’t hear or see anything. But wait….what’s that smell????? Oh , it’s the bathroom right behind me. Yeah, that door my elbow keeps brushing up against. Oh man , we had to laugh. The only seat that could have possibly been worse was actually sitting on the toilet!!! It was pretty funny.
And once again Bauer made good use of all clothing that was packed. He peed through two shirts and two pairs of pants. All we had left was one pair of pants. No shirt. Nice. I can see the movie title now……..The Clampetts go to Boston. I could almost sense the thoughts of people in the terminal….
” That poor child. His parents should be arrested. Who brings a baby on a plane without any clothes on?” If they only knew. We were just glad it was on our way to Florida and not Boston. At least it wasn’t cold outside. You just had to laugh.

NOTICE!

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